(redacted to J), the placement worker, faxed to me 35 pages of info on the two little boys, some of which included medical reports and some facts on their baby sister.
I noticed on the placement forms that the baby sister was diagnosed with something called Glutaric Aciduria Type 3 at birth. Apparently it is very rare. I had never heard of it so I decided to do a google search. There is absolutely no information about a Type 3; anything to do with Glutaric Aciduria (acidemia) is only referred to as Type 1 or Type 2.
(redacted to PS), if you were to check out www.glutaricacidemia.org and look under "FAQ", they state, quite simply, that children with glutaric aciduria are often misdiagnosed with, believe it or not. Shaken Baby Syndrome.
I'm sure that the doctors at Childrens Hospital would have already checked this out, and would already have all this info ... they are the doctors after all. However, I don't have access to any of the info re. the baby girl and I know it's not any of my business. Unfortunately, I am going to be responsible for the two little brothers, and I was told they came into care because their sister was diagnosed with Shaken Baby Syndrome. Because the little girl isn't any of my business, I feel uncomfortable talking about this with the guardianship worker, (redacted to KG). Conundrum. So, I thought I would pass my problem onto you. I was wondering if it was appropriate for you to just check with the childrens' worker, and make sure that they know about the symptoms, etc. of this rare disease, and that it has been ruled out as having any affect on her symptoms of Shaken Baby Syndrome.
